Jump to: Timeline Info Hub COVID-19 Resources
The COVID-19 Learning Lab brings together a Learning Community of patients, caregivers, providers, and researchers in activities designed to co-create and execute a patient-centered research agenda focused on topics relevant to the COVID-19 Pandemic.
This community is for anyone who has been impacted by the COVID-19 pandemic. You don’t need to have had a COVID diagnosis to join. You don’t need to have had a COVID diagnosis to join. As a member of the Learning Community, you will have the opportunity to participate in Learning Lab activities that include online research trainings, virtual workshops, and surveys. Our goal is to identify research priorities and help researchers understand what issues and outcomes are most important to patients.
Our Impact
Patient Prioritized Research Topic List
Disseminated Research Results to Patient Community
Connected Community Members to Researchers
Timeline & Events
December 2021
Virtual Workshop 1
•Identify patient and caregiver priorities to shape research focused on the COVID-19 pandemic
•Understand current questions and gaps in knowledge to guide the development of a training module for patients and caregivers wanting to learn more and engage in research
March 2022
Virtual Workshop 2
•Engage in Team Science activity focused on communication and working effectively in a team
•Have opportunities to network and build relationships
•Refine our COVID-19 Topic list and narrow into a project you would like to see started (and help us start)
August 2022
Virtual Workshop 3
Talk with researchers about projects related to COVID-19
Collaborate with other members of the community interested in COVID-19
Share insights to guide how COVID-19 research can reach patients and caregivers
February 2023
Virtual Workshop 4
Info Hub
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COVID-19 Glossary
Use this glossary, published by WebMD, to get familiar with terms often used in coverage of the novel coronavirus, which causes COVID-19.
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Pandemic Timeline
This timeline, by the CDC, provides information about select moments in the COVID-19 pandemic beginning from its known origins to today.
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COVID-19 Basics
This website is a good resource for reliable, easy-to-understand answers to all your questions on the COVID-19 Pandemic.
Our Learning Lab’s Work
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Research Training
Get started on PCORI’s Research Fundamentals self-paced, online training using the Quick Start Guide.
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Patient-Created Research Priorities (v.1)
Early work identifying patient and caregiver priority areas related to the COVID-19 Pandemic.
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Community Priorities and Partnerships
Downloadable infographic showcasing our process, patient priorities, and opportunities for collaboration.
Highlighted Research
Resources
We realize that during the pandemic finding reliable information and resources has been challenging. Through suggestions from our COVID-19 Learning Community, we have curated a short list of places you can go to find the information you need.
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The most up-to-date information is available from the World Health Organization, and the US Centers for Disease Control and Prevention
Patient Advocate Foundation’s website offers a variety of resources for those affected by the COVID-19 pandemic.
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Benefits.gov provides links to financial aid to families
Patient Advocate Foundation Co-Pay Relief Program offers a COVID-19 Fund
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USDA Food and Nutrition Service on nutritional assistance need during the pandemic, through state and local partners.
The Feeding America website provides a locator tool to assist families in finding local food banks in their area.
Want to participate in our COVID-19 Learning Lab?
The COVID-19 Learning Lab and Learning Community was partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EASC-COVID-00362)